Dear Ones,
I have many goals, some specific, some still taking shape, all really important and esciting to me, and I shared two with my doctor a couple months ago. I wanted to see Danny graduate and I wanted to finish teaching the school year. Wham! I got what I asked for (and a joy it was!), and as soon as my wishes were fulfilled I hit a big bump in the road.
As many of you know, Monday was our last day at school and Tuesday I had scheduled to re-enter treatment at the Cancer Care Alliance (SCCA) to prepare for a bone marrow transplant. My lab reports in late May showed I was in remission and everything looked great; I felt wonderful. The end of any school year can be extraordinarily busy and mine included a week at Outdoor School and the move to Lake Forest Park I was tired, but happy as could be with plenty of energy.
Reentry into the Cancer World was tough at best, and mine was especially funky as I had quite a cough and was immediately put on 'respiratory isolation' which meant I had to wear a mask, sit in a confined part of every waiting area and ride the elevators alone. I was meeting a whole new team of medical folks and felt like the new girl in school without a face. I dutifully showed up for every health test imaginable and kept a vigorous schedule dashing about the fancy new buildlings on Lake Union. I was a little overwhelmed, but I was moving toward this transplant that promised the best bet for me to beat this form of leukemia. On Thursday morning I did a bone marrow biopsy and spinal tap (wow! They are painful!) and by Friday afternoon was in a meeting with my new doctor and physician assistant to hear the very troubling news that the leukemic 'blasts' had returned with a vengeance and I had to postpone my transplant.
After a long night of soul-searching, tears and hugs with Jon, we agreed (as did all the medical folks involved) to keep at it and my immediate job became that of the cowardly lion who had to find his courage.
I returned to Dr. White and Swedish Hospital early Monday morning to resume a hard dose of chemotherapy. I have to be in remission to begin the transplant process and, by golly, remission it will be! It's very similar to what I've been doing since November. Today is the third day and I'm holding up well, expecting to return home on Friday. Another short leash between me and clinic will be tethered for the following one to two weeks, then another round (or more) of chemo til I get back into remission. Then, it's a straight shot back to the transplant world - no waiting this time. Dr. White calls it a 'bump in the road,' and though I might dispute that it feels more like boot camp, I'll travel through with the same commitment I've had all along.
I wrote a new set of goals. The one I'll share with the doctors this time is "29,200 hours of fresh air and sunshine."
Visiting and calls can be tough, so trust that I love and think about you more than you know.
With Hope and Joy,
Lynn
Friday, July 3, 2009
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8 comments:
My prayers and thoughts for a speedy recovery are with you, Lynn. You are a strong woman! With love, Melinda
Lynn, You have been on my mind a lot the last few days. Maybe, it's because I have been in the beautiful outdoors. Hans and I stayed at a place that reminded me of camp! I admire you Lynn and know you will beat this! Sending you mountains of hugs and love.........
Teresa
Lynn, My prayers and thoughts are with you each day. Keep your family close and lean on us all for support.
Love, Margaret
Lynn,
I can feel the radiance of your smile and the strength of your soul as you battle on. Know we are all thinking of you and looking forward to your achieving your goal of so many hours in the sunshine!
I love ya honey!
Pam Rogers
Lynn,
Thank you so much for the update. I'm sure it is very difficult to comprehend what you are going through, let alone sharing it with others. Please know that you are constantly in my thoughts & prayers.
Remember, "Life isn't about weathering the storm....it's about learning to dance in the rain!!!" I believe you are learning to samba, jitterbug, salsa, hip-hop & walz!!!
With loving thoughts,
Suzette
Lynn, It was so great to see you Thursday, you are beautiful as ever. Thinking of you and sending much love, countless hugs and heartfelt prayers.
Hey *star girl you are my biggest fan. I think about you everyday and wish I could help you more Lynn. I dedicate the *North Star to you and everytime I see it I will think of you. It is the strongest and most brillant star. It is an amazing star, just like you. We love you Lynn, take care. *
Sandy
Dear Lynn:
We wish you courage in this difficult struggle. We send you our very best
wishes and I think of you often and
always think of the nice time we
had at AH and the good chats you and
Laura always had.
Keep up the fight.
Love:
Joke N
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